The Beat Newsletter Archive

NOTE Registry
NOTE Registry- prospective registry of efficacy and safety of Non-vitamin K Oral antagonists (NOACs) for Thrombo-Embolic prevention in adults with...
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Check out the latest news from our CACH Network centres across Canada - June 2014
To view the latest newsletter click here....
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Remembering Donald Nixon Ross
It is with great sadness that we announce the death of Mr Donald Ross who passed away peacefully at his...
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Remembering Dr. Joseph Perloff
Dear ACHD Community:

It is with great sadness to inform you that Dr. Joseph Perloff, a pioneer in Congenital Heart Disease,...
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President’s Message - October 2012

Season: 2012

CCC 2012 in Toronto

CCS Affiliates have the choice to arrange a single, endorsed Workshop or a single Spotlight Session in any given Congress year, and are hosted by the affiliate on a subspecialty topic. CACH Network has chosen to arrange a Spotlight Session entitled Lessons I never forget, with a special focus on arrhythmias, imaging and pregnancy. This session will be held on Tuesday, October 30, 2012 (11:00 am to 12.30 pm) and will be one of the highlights of the CCC 2012 in Toronto. At the conclusion of the session, participants will be able to:

• Recognize the different management strategies between patients with
  congenital and acquired heart disease;
• Formulate management strategies which should not be pursued in
  congenital patients with arrhythmias;
• Recognize the need of special skills in imaging of congenital patients;
• Identify woman who need a referral to specialists prior to pregnancy.

Please download the Congenital Heart Disease Program at a Glance at the CCC 2012 in Toronto here.

CACH Network Annual Business Meeting at CCC 2012 in Toronto

The Business Meeting will be held in Room MTCC 704 on Sunday, October 28, 2012, 5:30 to 7:30pm.

CACH Network Members have received a special invitation by email. There is the tradition that a local CACH Network representative gives a talk. Dr. Luke Burchill, ACHD and Heart Failure Fellow, will present from 7 to 7.30 pm the first Website designed for young people with CHD moving from pediatric to adult care. The website is called iHeartChange and was developed by Dr. Adrienne Kovacs (Toronto), in close collaboration with Dr. Luke Burchill (Toronto).

ACHD Training Guidelines: Position Statement and Area of Focused Competence Diploma

Training and Maintenance of Competency Guidelines in any subspecialty have a high priority to establish and to meet national and international standards. Guidelines regarding training requirements and accreditation in ACHD are in preparation in the US and in Europe.

Germany was to first to introduce guidelines regarding training in ACHD in 2010 (Hess J, et al. Int J Cardiol 2011; 149:16-91). Subspecialty certification in ACHD cardiology will be approved soon in the USA. This will go forward with the support of the ABIM (American Board of Internal Medicine) and the ABP (American Board of Pediatrics). They are in the process of approving a two-year program designed to increase the output of cardiologists with special knowledge and skills in the management of ACHD patients. The ESC is also preparing a document regarding ACHD training.

CACH Network is evaluating the process of a CCS/CACH Network Position Statement regarding ACHD training and maintenance of competency and an Area of Focused Competence (AFC) Diploma in ACHD issued by the Royal College of Physicians and Surgeons of Canada (RCPSC).

23rd Annual ACHD Symposium at Skamania Lodge: June 2-5, 2013

The organizing committee under the leadership of Dr. Craig Broberg and Dr. David Sahn are composing an outstanding program. Please mark June 2-5, 2013 in your calendar.

International Pediatric and Congenital Cardiac Code (IPCCC)

Many Canadian Congenital Heart Disease Centres use CACH codes that were developed by Dr. Gary Webb and do not match entirely to international codes. IPCCC (International Pediatric and Congenital Cardiac Code) is a master code developed to translate two different pre-existing coding systems for congenital heart disease which were published in 2000: EPCC (European Pediatric Cardiac Code) and Society of Thoracic Surgeons and European Association for Cardio-Thoracic Surgery Code (STS-EACT).

The former was more robust for diagnostic terms, the latter was more robust for procedural terms. An International Nomenclature Working Group combined the terms from the EPCC and STS-EACT nomenclature lists and other nomenclature lists (e.g. CACH Network Codes) to produce a comprehensive, single nomenclature tree for pediatric and congenital heart disease: this list is called IPCCC (=master code). Terms were added to the EPCC and STS-EACT codes, now called EPCC-derived IPCCC and STS-EACT derived IPCCC.

Dr. Jack Colman (Toronto), in collaboration with Dr. Gary Webb and Graham Jericho, has translated the CACH coding system via IPCCC to EPCC-derived IPCCC codes. This translation was recently finished and allows standardization of CACH codes throughout Canada to EPCC-derived IPCCC. I am currently testing the new coding system (IPCCC) with the Toronto database to identify glitches before final release.

The ACHD e-Learning Center

As the number of ACHD patients is growing, an increasing number of health care providers with expertise in ACHD are needed. One implication – amongst others – is the development of high quality training programs, courses and educational material and the provision of easy access to such material. This is one of the global mission of the International Society of Adult Congenital Heart Disease and the purpose of the ACHD e-Learning Center, which is established under leadership of Dr. Gary Webb, Chair of the Editorial Board of the ACHD e-Learning Center, and Dr. Erwin Oechslin, Chair of the WG on Education Committee of ISACHD. The generous support of the Cincinnati Children’s Hospital will make this e-Learning Center happen. The first component of the ACHD Learning Center will be the Cincinnati Symposium in June 2011.

The next will be the link to the Toronto ACHD Symposium 2012 and the link to the Heart Disease and Pregnancy website and to the Nevil Thomas ACHD Library.

We sent an email in early summer 2012 to collect links to existing educational resources, which will be made available via the ACHD e-Learning Center. If you know such teaching material, please email Dr. Gary Webb ( or Dr. Erwin Oechslin ( . An international Editorial Board from North America, Europe and Asia will screen the material for quality and suitability which will be published in partnership with the authors of the material: the ACHD e-Learning Center is an e-portal for easy and global access of available education material in ACHD.

Carole Ryan – New CACH Network Administrative Assistant

Angela Kennie has left University Health Network/Toronto General Hospital who has served as administrative assistant for more than three years. I appreciate her support and assistance. Please welcome Carole Ryan, Program Co-ordinate of the ACHD Program at UHN/TGH, who has accept the role as our administrative assistant. If you have any questions please contact her at

I am looking forward to meeting you in Toronto.

Erwin Oechslin
President, CACH Network
October 15, 2012