The Beat Newsletter Archive

NOTE Registry
NOTE Registry- prospective registry of efficacy and safety of Non-vitamin K Oral antagonists (NOACs) for Thrombo-Embolic prevention in adults with...
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Check out the latest news from our CACH Network centres across Canada - June 2014
To view the latest newsletter click here....
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Remembering Donald Nixon Ross
It is with great sadness that we announce the death of Mr Donald Ross who passed away peacefully at his...
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Remembering Dr. Joseph Perloff
Dear ACHD Community:

It is with great sadness to inform you that Dr. Joseph Perloff, a pioneer in Congenital Heart Disease,...
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President’s Message - July 2012

Season: 2012

CACH Network Elections

It is my great pleasure to welcome Dr. Ariane Marelli, Montreal, as new Vice-President, and Dr. Jasmine Grewal, Vancouver, as Treasurer. We are very grateful to the Nominating Committee under the leadership of Dr. Candice Silversides, Toronto, who proposed two outstanding candidates for these two positions. Please join me and congratulate Dr. Marelli and Dr. Grewal for their election.

On behalf of the CACH Network Members, I express my sincere thanks to Dr. Isabelle Vonder Muhll, Edmonton, who has served as Vice-President since 2004 and has been a very committed and engaged member of the Board. We acknowledge her great achievements for physicians and patients. I am also thankful to Dr. Reda Ibrahim, Montreal, who has served as Treasurer since 2010.

Board of Directors:
  • President: Erwin Oechslin, Toronto
  • Vice-Presidents: Candice Silversides, Toronto, and Dr. Ariane Marelli, Montreal
  • Treasurer: Dr. Jasmine Grewal, Vancouver
  • Secretary: Dr. Andrew Crean, Toronto
  • Nursing Representative: Jaimee Feldstein, Vancouver
Administrative Assistant: Angela Kennie, Toronto

Dr. Paul Khairy: President-Elect of the ISACHD

Dr. Paul Khairy, Montreal, was appointed as President-Elect of the International Society of Adult Congenital Heart Disease. Dr. Khairy was nominated bye the Nominating Committee of ISACHD and started his position as Executive Board Member at ACC in Chicago 2012. This is an acknowledgement of his great contributions to the field of ACHD and a great honor for the Canadians. Dr. Khairy will be the 3rd Canadian ISACHD President after Dr. Gary Webb (1994-1996) and Dr. Jack Colman (2006-2008).

Executive Committee of ISACHD:
  • President: Dr. Curt Daniels, Columbus, OH
  • President-Elect: Dr. Paul Khairy, Montreal, QC
  • Past-President: Dr. Barbara Mulder, Amsterdam, NL
  • Secretary: Philip Moons, PhD, RN, Leuven, BE
  • Treasurer: Dr. Koichiro Niwa, Tokyo, JP
  • Asian-Pacific: Dr. Koichiro Niwa, Tokyo, JP
  • Canada: Dr. Erwin Oechslin, Toronto, ON
  • Europe: Dr. Helmut Baumgartner, Muenster, DE
  • South America: Dr. Luis Alday, Cordoba, AR
  • USA: Dr. William Davidson, Hershey, PA

22nd ACHD Symposium in Toronto

The Symposium is less then two weeks away! Please join us for an excellent program to be held at the Toronto Marriott Downtown Eaton Centre Hotel from May 30 – June 2, 2012. Many of you took advantage of the reduced registration fee for paying CACH Network members.

This Symposium, organized in partnership with the Oregon Health & Science University in Portland (Oregon), Cincinnati Children’s Hospital Medical Centre, University of Cincinnati (Ohio) and University of Toronto, is a unique forum where medical professionals can meet their colleagues from around the world, and exchange ideas and information in the field of Adult Congenital Heart Disease.

‘Beyond Saving Lives’ is the theme of the Symposium. Thousands of lives of children have been saved, but we are facing new challenges in the growing and aging congenital heart disease population. In addition to the common long-term complications such as heart failure, arrhythmias, the Fontan disease, pulmonary arterial hypertension and others, we are challenged with end of life questions and the provision of advanced/supportive care, which has been ignored and neglected in our young patients so far. A plenary session (Beyond Saving Lives or Code ‘Palliative’: Quality of Death and Dying Experience) and a Workshop (Advanced Care Planning in Adult Congenital Heart Disease) will cover this hot topic amongst many others.

Dr. Ivan Rebeyka, Edmonton: Distinguished speaker of the Dr. William G. Williams Lecture Dr. Gary Webb, Cincinnati was the inaugural speaker of this lecture, which was introduced in honor of the Dr. Williams’ contribution to the field of congenital heart disease in 2008. Dr. Ivan Rebeyka will be the distinguished speaker at this year’s meeting; the title of his presentation is Hypoplastic Left Heart Syndrome – New Challenges of a New Generation of CHD Patients.

Abstracts There were 66 abstract submissions: 51 abstracts have been accepted for poster presentation and 3 abstracts have been accepted for oral presentation. A special thank to Dr. Lucy Roche, our Abstract Co-ordinator, and Joann Beck, her assistant who worked very hard to organize the abstract submissions and presentation.

Winner of the Young Investigator’s Award
Losartan Therapy has Prominent but Highly Variable Effects on Circulating TGF-β in Marfan Patients: Franken R, Radonic T., den Hartog AW, van Eijk M, Groenink M, de Witte P, Timmermans J, Scholte AJ, van den Berg MP, Pals G, Mulder BJM, Zwinderman AH. - Academic Medical Centre, Amsterdam, Netherlands.

Winner of the Nursing Research Initiative Award
Atrial Tachycardia in Adults with Tetralogy of Fallot

Byrne KH, Nagy CD, Holmes KW, Crosson JE. - Johns Hopkins University, Baltimore, MD, United States and Adult Congenital Heart Disease Program, Peter Munk Cardiac Centre, Toronto General Hospital, University of Toronto, Toronto, ON, Canada.

I expect the Symposium to provide the best of science and education in this area of practice. The Program is designed for all healthcare professionals working with Adult Congenital Heart Disease (ACHD) and should familiarize participants with the latest clinical information on the diagnosis and management for ACHD. Nursing and Congenital Cardiac Care Associates will also have a major educational role within this Program.

Online Registration is still open and hotel rooms are available for special rates (single and double room for only $189.00 CDN)

Cardiac Pathology & Imaging Course in Calgary

The 3rd Cardiac Pathology and Imaging Course will be held in Calgary from June 21-23, 2012. An internationally renowned faculty with Prof. Robert Anderson as distinguished guest from Europe will answer burning questions and pathology and imaging. More information is available at CACH Network. This course is endorsed by IACHD. There is a limit of 55 participants for the course.

Renewal of Your CACH Network Membership

Thank you for renewing your CACH Network membership and paying your annual membership fee. I encourage all of you who have not paid the membership to do so.

I highly appreciate your ongoing support and interest in the CACH Network and renewal of your membership. Your contribution makes a difference.

Cincinnati 2011 ACHD Course Material is online!

A great deal of excellent teaching and learning material about adult congenital heart disease, which is available for your use at The two major types of resources are ‘Topic-based Learning’ and Case-based Learning’ material which was recorded at the 2011 ACHD Program in Cincinnati and is of great value to physicians, cardiac care associates and other health care providers with in interest in ACHD. There is also a direct link from CACH Network or The Nevil Thomas ACHD Library ( There is a five-star scoring system and Dr. Gary Webb would be very grateful for feedback from each user as to how valuable each presentation was to them. Users will also note a help button to teach them who to use the system.

CACH Network Business Meeting at CCC 2012

The AGM or Annual Business Meeting will be held during CCC 2012 in Toronto on Sunday, October 28, 17:30 to 19:30 (Room TBN).

6th Edition of Perloff’s Clinical Recognition of Congenital Heart Disease

Dr. Joseph K. Perloff and Dr. Arianne Marelli released the publication of Perloff’s Recognition of Congenital Heart Disease at the American College of Cardiology Meeting.

Erwin Oechslin,
President, CACH Network