CCHA



   

There are more than 180,000 Canadian children and adults with congenital heart defects (CHD) who need your help.

The Canadian Congenital Heart Alliance (CCHA) is a volunteer-run organization made up of patients with a congenital heart defect, their friends, families, and the medical community. With your support, we aim to improve the quality of care for these patients, many of whom require lifelong expert care.

CCHA was founded in 2004 to support all Canadians with CHD. One of immediate goals is to raise the profile of adult congenital heart disease in Canada, due to the current lack of funding and support. We want to ensure that adult CHD patients receive the same excellent standard of care as children and at the same level as non-congenital cardiac patients.

CCHA has the strong support of CACH as well as congenital heart healthcare professionals across Canada.

Some facts about congenital heart defects in Canada
  • CHD is the world's leading birth defect. About 1 in 100 Canadian children are born with CHD. In the past, few made it past their teens. Now, approximately 98% make it to adulthood – resulting in a growing population of young adults who require life-long cardiac care.
  • Across Canada, there are an estimated 100,000 adults with CHD (outnumbering CHD-affected children). At least half face the prospect of complications, multiple surgeries, and/or premature/sudden death.
  • There are more Canadians with CHD than there are with Parkinson's disease (100,000), multiple sclerosis (75,000), HIV/AIDS (58.000), cerebral palsy (50.000), or cystic fibrosis (3,600), and yet there is very little awareness, research, or funding.
  • There are far fewer resources allocated for the care of adult CHD patients than other cardiac patients. As a result, wait times for clinical visits and surgical intervention are much longer than for other cardiac patients – leading to increased anxiety, added risk and even death.
  • In Canada there are 15 regional facilities to treat adults with CHD – with five designated as "Centres of Excellence".
  • Research in the area of adult CHD has not reached the level of sophistication observed in other areas of heart disease research – even though CHD-related research has the potential for greater impact.
Accomplishments

To read about our accomplishments and the latest news, please click here.

Advisory Board Members

Chair: Erwin Oechslin MD, FESC - Director, Toronto Adult Congenital Clinic (TACCC)

Members:
Arianne Marelli FRCP (C) FACC - Associate Professor of medicine at McGill University; Director, MAUDE Unit (McGill Unit for Congenital Heart Disease); President of CACH Network
Erwin Oechslin FESC - Director, Toronto Adult Congenital Clinic (TACCC); Past President of CACH Network
Candice Silversides MD, MS, FRCP (C), FACC - Cardiologist at TACCC specializing in Women's issues with CHD; Vice President, CACH Network
Judith Therrien MD, FRCP (C) - Cardiologist at Montreal's Jewish General Hospital, McGill University
Andrew Redington MB, BS, MRCP (UK), MD, FRCP (UK), FRCP (C) - Director of Cardiology for the Hospital for Sick Children, Toronto

Liaison Advisory Board Member:
Gary Webb MD - Professor of Medicine at the University of Pennsylvania, Director of the Philadelphia Congenital Heart Clinic, and Chair of the Medical Advisory Board to the American Adult Congenital Heart Association.

How You Can Help
Donate by click the CanadaHelps link on the home page of www.cchaforlife.org or by sending a cheque to:

CCHA
C4-233 Cross Avenue, P.O. Box 233
Oakville, ON L6J 2W9

For more information, please visit www.cchaforlife.org