International ACHD Guidelines:

• 2018 American Guidelines. ACC/AHA Guideline for the Management of Adults with Congenital Heart Disease
• 2010 European Guidelines. Grown-up Congenital Heart Disease Guidelines.

The last CCS Guidelines on ACHD care in Canada were published in 2009 (Executive Summary). Stay tuned for the 2020 CCS ACHD Guidelines coming soon!

This page provides links to sites of interest about congenital and hereditable conditions that may affect the heart. If you would like to participate in a link exchange please contact our This email address is being protected from spambots. You need JavaScript enabled to view it..

• About Kids Health - Hospital for Sick Children (Toronto)
• Adult Congenital Heart Association
• American Heart Association (AHA)
• Association for European Pediatric Cardiology (AEPC)
• Canadian Congenital Heart Alliance (CCHA)
• Canadian Pediatric Cardiology Association (CPCA)
• Congenital Heart Information Network (CHIN)
• Congenital Heart Surgeons' Society (CHSS)
• Corience - An independent European platform on congenital heart defects
• Glossary for Adult Congenital Heart Disease
• International Pediataric and Congenital Cardiac Code (IPCCC)
• International Society of Adult Congenital Cardiac Disease
• Heart Disease & Pregnancy
• Heart Institute Encyclopedia
• The Hope Heart Institute
• Mayo Clinic - Congenital Heart Disease - Diagnosis and Treatment Options
• NASPE Heart Rhythm Society
• The Nevil Thomas Adult Congenital Heart Library
• Royal Children's Hospital - Cardiology Department
• The Grown Up Congenital Heart Patients Association
• Virtual Hospital (University of Iowa)

• American College of Cardiology (ACC)
• Canadian Cardiovascular Society (CCS)
• Canadian Society of Echocardiography (CSE)
• Canadian Marfan Association
• Marfan's syndrome

• American Heart Association (AHA)
• Cardiovascular Diseases from Karolinska Institute
• Down's Heart Group
• Gene Tests
• Hardin-Meta Directory
• Medline and PreMedline through the National Library of Medicine PubMed
• MedlinePlus
• National Organization for Rare Disorders
• OMIM - Online Mendelian Inheritance in Man
• Pacemaker Arrhythmia Self Help Group (PASH)